L5 S1

I feel so distant from the pain that was within me earlier this year; both physically and emotionally.

It’s hard to believe it was only nine months ago when I questioned if I’d be able to walk “normally” again- without pain, without limping. I wasn’t very good at listening to my body and would struggle explaining to my GP and neurosurgeon, where the pain was, how it felt and the severity of the nerve pain. I work with universities helping to train medical students in communication, by pretending to be a patient. You’d think after years of talking injuries, accidents, unfortunate diagnosis’ and death, I’d have a handle on the pain scale structure and what information is required for history taking. Yet when it’s happening to you, well, what is real feels very different to what is not.

The medical team suggested I make pain notes. Pain is a strange thing, hard to control, hard to process and at times hard to heal.  I made a conscious effort not to let this pain be a vocal point in my life. 

“This is not going to become part of my identity,” I thought, so only in the margins of my diary I wrote out my pain in red pen:

2.3.15

+hurts

+hurts when I sleep

+hurts when I wake

+when I walk

+standing hurts

+bending down hurts

3.3.15

+same as the day before

+hurts when I cough

+after walking for a while I forget the pain

4.3.15

+a little better when I stood up this morning

+still hurts when I cough

5.3.15

+sore all day, filming all day  = standing all day

6.3.15

+hurts getting up

+cried at the physio

+hurt all day

+pain killers not helping

7.3.15

+hurt in the morning

+hurts holding things

+hurts to walk

+couldn’t pick up car keys off the ground

+new pills from GP

+getting older tomorrow

8.3.15 [#birthday]

+hurts when I sneeze

+hurts when I cough

+used heat patch

9.3.15

+left sign school early because of pain

10.3.15

+NO PAIN IN THE MORNING!!!

11.3.15

+woke in pain

+hurts when I cough

+got sent home from work

+cried on the floor

the following was a ‘to do’ list I had written at the time:

-sleep

-cry

-listen to records

-lay on the floor

-cry

-sleep

-walk

-repeat

I’m glad that I wrote these things out because I’d forgotten, not necessarily the effects but how it felt. It was terrible but I couldn’t be as thankful as I am right now, if I were not able to re-read what I’d gone through. I made a decision to take time and write the specifics about what I was going through at that time in my life and I’m glad I did.

It’s a process and I still have to be careful. Now there are days when I have no pain. I remember thinking “if you can’t feel your spine, it’s a good time”.  I’m hopeful that in time I will be closer to that point.

This morning I had physio-pilates at 7:20am on a pain scale where 1 is the least amount of pain I’ve experienced and 10 is the most; I would rate this mornings session at 2. Earlier this year I would say I’d hit a 10 for sure.

Throughout this year, even when I was on 4 different medications and my health needed to be a priority more than ever; I was still able to finish all my assignments and graduate sign school. I had my first composition performed live, I moved house, continued to work and support myself, drove a bus to Alice Spring, started taking piano lessons and got my taxes done. We are capable of some much more that we think we are.

To my GP, neurosurgeon, psychologist, physiotherapist x2, my sister and my dear friends; to whom without their support, the struggle would have been so much more real, I thank you.

So much has changed and I’m so thankful.

What did you learn?

• -     Healing is a mystery; it can happen over time or can happen in a moment.
• -       Writing is a great way to process what you’re going through.
• -       Don’t let the biggest pain in your life be the biggest thing in your mind.
• -       Sometimes really hard things happen and all you can control is your response to these things.
• -       You need other people, you can’t do everything on your own.
• -       One of the most important things in life are the choices that you make.

#camplife

I walked to the closest café, my spine won’t take me far; I feel slow in all ways, since august, if im honest. I know it’ll pass, these things do, it’ll just take time. Time being something I always have plenty of and not enough simultaneously. And I remember writing “I’ve been trying to push the days out the window; to make them jump. I feel like the quicker they come and go, the closer we’ll get to each other” #time

While my sign school class took holidays, I took to Phillip Island, working two weeks on camp. Camp is a complex beast; something hard and beautiful and worth it. I don’t want to over think it but must always find a way to process the experience by the end or I don’t know how I’d go back again.

In some ways normal; cabins, a lake, canoes, a giant swing, coffee, laser tag, calling the police on a kid, watching the blue penguins come to shore for the evening, sunrises, sunsets, coffee, a butter knife thrown at my face, camp food, orange t-shirts, a long drive and questions…so many questions.

Why do you have a boy hair cut?

How long until we’re there?

Why can’t we go to the Melbourne show this year?

What’s ‘will you be my girlfriend’ in sign language?

What’s ‘you’re a dump ****’ in sign language? 

You taught us the colours, why won’t you teach me that!?

How many penguins are in Australia?

Why is the ocean blue and why do the waves do that?

Is that the time coming in?

Where are they going?

Can I take one home?

Do I have to do home?

How may sleeps until camp again?

Who started the world?

If I wanted to go to heaven, whats the best way to get there?

Why don't you have a boyfriend?

Why doesn’t my dad love me?

And so many more. And I find I’m naturally very honest about how much I do or don’t understand. Kids respond to honesty. These kids do.

I have been doing this for over 2 years now and I would say this camp was the toughest yet, and yes, having a knife thrown at me was terrible experience and calling the police in wasn’t great either. It moves me every time and I have a heat patch on my spin and tears fall from my eyes sitting here, at this café from all kinds of pain but I will keep going back as long as I can because when im with those kids, I feel I am really living. If I can give them a glimpse of hope that suggests they can grow into a decent human, a positive contributor to society and someone they can look at in the mirror and think ‘today I like you’; then in my mind that’s worth it.

The reality is these kids come from very difficult situations and they’re not in some distance, far away place; they are in our backyard.

My housemate said it “might be time to look for another less dangerous holiday job” and the physio said “you’ve been accepted for the 12 month health plan, usually I only have people with obesity or lung problems; normally heavy smokers- so that must be some kind of pain you’re in.” to which I replied “it’s not the worst pain I have...”

It’s only a small window of time I get to spend with these kids and I believe that hope is so important and I see unique potential in each child I interact with and I’m so far from not caring. When it comes to camp I think “I can’t just do nothing about it, when I can do something about it.”

And so I’ve decided I’m willing to take whatever life throws at me… literally.

I woke before sunrise one morning, while everything on the island was still new and unfamiliar. I found my way to the beach to watch the sunrise. Upon reflecting on that morning, I wrote the poem below, in case my writing is illegible, here it is:

“Remember early when your colours called my name.

Breaking into dawn, 

spilt in, 

old from new. 

Darkness before me; I walked the field. 

Dew and grass and mud on boots, I didn’t mind- 

in fact the opposite.

All the sounds of children, even in my sleep, never ceasing and

I climbed the restless night wide in thought. 

Now with one simple step in front of another; I anticipate your next move.

Chasing down your mystery with a ‘why’

and many

and always seeking.

Content but never satisfied until I know. 

And I see you in the water, in the sky, in the eyes of others. 

If a howl,

if a whisper 

or in the silence breaking through; 

your colours always calling me, drawing me to you.”

#boniverandpineapplejuice

#abouttoday...

"after a good 2 and a half hrs on the bike, i rode back at night and the streets were lit up and alive and the cool breeze was flowing through my hair and i felt safe while i was moving and i thought "if you keep moving you won't get hurt". i had reached the hostel but didnt want the bike ride to end, so i went up and down the highway by the beach. Singing Bon Iver to myself along the open road, the street light flickered above me and i looked up and breathed in and it was just a perfect moment. I love the beach at night.

That night back at the hostel, i met Wayne, a friendly englishmen who had seen me walking on the beach earlier that day. He said he knew it was me because of the flowers in my hair. we talked for a couple of hours while i cleared out the pineapple juice that had spilt through my bag on the bike ride... He thought it was strange to see a 'westerner' wearing a face mask. i said "you know you're not that different right? i mean- you know we're all just people? besides everyone's doing it; im just keeping up with the fashion..." he laughed. 
"So what are you doing here; you had a love that ended in heartbreak or you buried someone under your floorboards?" 
"are they my only options>?" i replied.
"basically" he said
"well, i choose 'C'- all of the above" we both laughed.
"yes, i believe thats the way it usually happens." he remarked.

ive been in Vietnam for a week now and have written 76 pages of A4 notes. Wayne laughed at me for writing and said maybe i think too much and i said maybe everyone thinks too much, its just the quility of thought that varries...i guess sometimes you've just got to get out whats inside. Its seems that as soon as the thoughts touch the paper more and more and more flood me... #drowninginthought. This trip is, i think, the most selfish act i've followed through with but im deturmined to turn it into something better than that..."